¡Say Hola Lola!

About   Lola's Diagnosis   Contact Us    Ask me anything   

Two souls, in love, guiding our daughter with West Syndrome down a path of health and hope. All original content copyright ¡Say Hola Lola!, 2011 - 2012

October 11, 2014 at 5:15pm
2 notes
Lola

Lola

October 10, 2014 at 1:50pm
1 note
Picking out his nine month birthday meal, but of course. #sebastian #ninemonths #baby #happiness

Picking out his nine month birthday meal, but of course. #sebastian #ninemonths #baby #happiness

October 6, 2014 at 7:07pm
0 notes

I Lied About Being Able to Relax

I Lied About Being Able to Relax

What do you do to relax and how do you know once you’ve achieved relaxation?”

Simple question, right?

I was sitting in a circle with maybe a dozen other people. All of us parents of children who have vision impairments among other ‘different-abilities’. For once, I didn’t feel vulnerable sharing pieces of me that I tend to tuck away until the time is right. We were all together for the annual

View On WordPress

October 3, 2014 at 5:43pm
1 note

This happened today — I love that he made his own walker! #sebastian #baby #milestones

October 2, 2014 at 6:36pm
4 notes
Why yes I took a picture before I saved him.  #parenting #noshame #siblings

Why yes I took a picture before I saved him. #parenting #noshame #siblings

September 21, 2014 at 5:43pm
0 notes
Southeastway Regional Park #exploring #sunday #family #sanity

Southeastway Regional Park #exploring #sunday #family #sanity

September 20, 2014 at 1:54pm
2 notes
Our happiness.  #saturday #siblings #family

Our happiness. #saturday #siblings #family

6:14am
1 note
Saturday morning — if only they could make breakfast out of all the food they keep pulling out.  #siblings #trouble #saturday

Saturday morning — if only they could make breakfast out of all the food they keep pulling out. #siblings #trouble #saturday

September 19, 2014 at 11:32am
4 notes
Babe magnet. #sebastian #baby #cute #ellenberger

Babe magnet. #sebastian #baby #cute #ellenberger

September 17, 2014 at 5:14pm
1 note
She looks like a little old lady shuffling around in her slippers while brushing her teeth. #lola #oldsoul #progress #forward

She looks like a little old lady shuffling around in her slippers while brushing her teeth. #lola #oldsoul #progress #forward

September 14, 2014 at 6:14pm
0 notes
Sunday.  #family #irvington #sunday #exploring

Sunday. #family #irvington #sunday #exploring

September 10, 2014 at 6:55am
2 notes
Coming to work with mom is pretty fun!  #happyeightmonths #sebastian

Coming to work with mom is pretty fun! #happyeightmonths #sebastian

September 9, 2014 at 8:42am
0 notes

Oh Life, Please Settle Down

Oh Life, Please Settle Down

Well, I started this post last week and then every kid disease and ailment took over my house. Lola was sick and it turned out it was Hand, Foot, Mouth Disease. I think Rob and I had it last weekend and of course Sebastian got it too. Aggghhh!! I didn’t even know what the heck HFMD was until I learned about the epidemic it has become in Indiana this year. Plus Sebastian is teething. And then…

View On WordPress

September 6, 2014 at 8:20am
3 notes
A big fat F U to epilepsy.  She had a seizure this morning.  She started the therapeutic level of meds today so no immediate need to worry, but I hate epilepsy.  I know hate is a strong word, but I hate it.  I hate that it takes my daughter to places I can’t bring her out of, I hate that I can’t fix it, I hate that I can’t control it, I hate that she’s so little and takes more medicine in a day than most people take in a week.  I know I have to be patient and I know she’ll overcome this, but enough already.  #seizures #epilepsy  #specialneeds #daughter

A big fat F U to epilepsy. She had a seizure this morning. She started the therapeutic level of meds today so no immediate need to worry, but I hate epilepsy. I know hate is a strong word, but I hate it. I hate that it takes my daughter to places I can’t bring her out of, I hate that I can’t fix it, I hate that I can’t control it, I hate that she’s so little and takes more medicine in a day than most people take in a week. I know I have to be patient and I know she’ll overcome this, but enough already. #seizures #epilepsy #specialneeds #daughter

September 5, 2014 at 1:08pm
2 notes
Lola’s been seizure free for one week now.  I’m always hesitant to post “no seizure” updates because the truth is they can come back at any given moment.  But for today, we’re celebrating a week without them.  Thanks to every single person who shown support to our humbled little family.  #epilepsy #seizures #lola #forward

Lola’s been seizure free for one week now. I’m always hesitant to post “no seizure” updates because the truth is they can come back at any given moment. But for today, we’re celebrating a week without them. Thanks to every single person who shown support to our humbled little family. #epilepsy #seizures #lola #forward