¡Say Hola Lola!

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Two souls, in love, guiding our daughter with West Syndrome down a path of health and hope. All original content copyright ¡Say Hola Lola!, 2011 - 2012

September 21, 2014 at 5:43pm
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Southeastway Regional Park #exploring #sunday #family #sanity

Southeastway Regional Park #exploring #sunday #family #sanity

September 20, 2014 at 1:54pm
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Our happiness.  #saturday #siblings #family

Our happiness. #saturday #siblings #family

6:14am
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Saturday morning — if only they could make breakfast out of all the food they keep pulling out.  #siblings #trouble #saturday

Saturday morning — if only they could make breakfast out of all the food they keep pulling out. #siblings #trouble #saturday

September 19, 2014 at 11:32am
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Babe magnet. #sebastian #baby #cute #ellenberger

Babe magnet. #sebastian #baby #cute #ellenberger

September 17, 2014 at 5:14pm
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She looks like a little old lady shuffling around in her slippers while brushing her teeth. #lola #oldsoul #progress #forward

She looks like a little old lady shuffling around in her slippers while brushing her teeth. #lola #oldsoul #progress #forward

September 14, 2014 at 6:14pm
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Sunday.  #family #irvington #sunday #exploring

Sunday. #family #irvington #sunday #exploring

September 10, 2014 at 6:55am
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Coming to work with mom is pretty fun!  #happyeightmonths #sebastian

Coming to work with mom is pretty fun! #happyeightmonths #sebastian

September 9, 2014 at 8:42am
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Oh Life, Please Settle Down

Oh Life, Please Settle Down

Well, I started this post last week and then every kid disease and ailment took over my house. Lola was sick and it turned out it was Hand, Foot, Mouth Disease. I think Rob and I had it last weekend and of course Sebastian got it too. Aggghhh!! I didn’t even know what the heck HFMD was until I learned about the epidemic it has become in Indiana this year. Plus Sebastian is teething. And then…

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September 6, 2014 at 8:20am
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A big fat F U to epilepsy.  She had a seizure this morning.  She started the therapeutic level of meds today so no immediate need to worry, but I hate epilepsy.  I know hate is a strong word, but I hate it.  I hate that it takes my daughter to places I can’t bring her out of, I hate that I can’t fix it, I hate that I can’t control it, I hate that she’s so little and takes more medicine in a day than most people take in a week.  I know I have to be patient and I know she’ll overcome this, but enough already.  #seizures #epilepsy  #specialneeds #daughter

A big fat F U to epilepsy. She had a seizure this morning. She started the therapeutic level of meds today so no immediate need to worry, but I hate epilepsy. I know hate is a strong word, but I hate it. I hate that it takes my daughter to places I can’t bring her out of, I hate that I can’t fix it, I hate that I can’t control it, I hate that she’s so little and takes more medicine in a day than most people take in a week. I know I have to be patient and I know she’ll overcome this, but enough already. #seizures #epilepsy #specialneeds #daughter

September 5, 2014 at 1:08pm
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Lola’s been seizure free for one week now.  I’m always hesitant to post “no seizure” updates because the truth is they can come back at any given moment.  But for today, we’re celebrating a week without them.  Thanks to every single person who shown support to our humbled little family.  #epilepsy #seizures #lola #forward

Lola’s been seizure free for one week now. I’m always hesitant to post “no seizure” updates because the truth is they can come back at any given moment. But for today, we’re celebrating a week without them. Thanks to every single person who shown support to our humbled little family. #epilepsy #seizures #lola #forward

August 31, 2014 at 7:15pm
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Bath time.  #bath #sebastian #happy

Bath time. #bath #sebastian #happy

August 28, 2014 at 6:21pm
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I had the pleasure of joining Lola’s class on their field trip today!  #isbvi #lola

I had the pleasure of joining Lola’s class on their field trip today! #isbvi #lola

August 27, 2014 at 2:29pm
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Girl is famished when she gets off the bus — how cool that she knows exactly what she wants and she knows where to find it.  #lola #specialneeds #progress

Girl is famished when she gets off the bus — how cool that she knows exactly what she wants and she knows where to find it. #lola #specialneeds #progress

August 21, 2014 at 3:19pm
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She’s having more seizures.  It sucks and we’re freaked out.  We’re still not at the therapeutic dose of meds yet so we’re hopeful she’ll respond soon.  But it is the worst feeling not being able to help your kid.  Please keep our girl in your thoughts and prayers.  #epilepsy #seizures #awareness #lola #specialneeds

She’s having more seizures. It sucks and we’re freaked out. We’re still not at the therapeutic dose of meds yet so we’re hopeful she’ll respond soon. But it is the worst feeling not being able to help your kid. Please keep our girl in your thoughts and prayers. #epilepsy #seizures #awareness #lola #specialneeds

August 20, 2014 at 12:06pm
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Trouble. #sevenmonths #baby #sebastian

Trouble. #sevenmonths #baby #sebastian